EP 301 – Celia is a disabled founder and Investor, a multi-award winning campaigner, lobbyist, researcher and policy designer, advocating for the improvement of disability equity and accessibility inclusivity.
We discuss Celia’s life long journey with Loeys-Dietz syndrome, and her personal and professional challenges. We talk about the importance of representation, access to benefits, and inclusive policies to advocate for a shift towards normalisation and societal integration of disabled people.
We speak about the role of SMEs in fostering inclusivity and how they can become more proactive. We also discuss the necessity for businesses and government bodies to embrace inclusive practices – to consult with disabled representatives for a more equitable and accessible future.
Celia also tells us why ineffective consultation qualifies for the big bin of bulls**t
Chapters:
00:00 BWB with Celia Chartres-Aris
01:17 Celia’s Journey with Loeys Dietz Syndrome
10:10 Challenging Disability Stereotypes
10:47 The Intersection of Disability and Normality
26:24 The World of Work as a Disabled Individual
32:57 Exploring Accessibility and Inclusion Challenges
33:33 Workplace Adjustments and Discrimination
36:19 The Impact of COVID-19 on Work Flexibility
37:18 Unconscious Bias and Disability Representation
39:56 Experiences with Disability and Public Perception
48:20 The Importance of Disability Inclusion in Business
56:04 The Complexities of Disability Support Systems
59:20 Better Disability Awareness and Support
01:04:35 Exploring Toxic Positivity and Its Impact
01:05:06 The Realities of Living with Disabilities
01:06:06 Internalised Ableism and Its Effects
01:06:57 The Healthcare System and Social Perceptions
01:07:39 COVID-19: A Window into the World of Disabilities
01:09:00 Disability Equality and Understanding in Society
01:14:11 The Cost of Living with a Disability
01:20:19 The Importance of Representation
01:24:12 Personal Reflections and Advice for Founders
01:27:17 Quickfire Round: Getting to Know Celia
Useful links from Celia:
Disability Confident Employer Scheme
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